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Care Providers

The Care Providers Speak

 

Referring Pediatrician:  “As part of regular pediatric practice, kids are seen with all sorts of behavioral problems, developmental problems, school problems, and most of these things fall within the realm of what we do everyday taking care of kids.  But there’s many times that we feel kids need additional resources that I can’t provide.  Trying to pick which specialist to see first is difficult.  We don’t always know whether a psychiatrist or a psychologist is going to be best, etc.  Now I have this resource, this team of professionals, who can take a look at their child and really shoot us in the best direction to address their needs, rather than waiting a long time to see one professional who may, in turn, say “well, really, you know, this isn’t my bag, you need to see this other person” and then it’s another few weeks or another few months.  The idea of getting relatively quick access to a whole team to then get the best referral; it’s worked for my patients very well.”

 

“The scope of things you could do without the collaboration was much more narrow.  Being able to coordinate care makes a big difference in the outcome.”

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“The shocking thing for all of us has been the realization that despite how good we are individually, none of the success we have had with CAPES could have been accomplished alone. That fact has reinforced the desire amongst all the team members to continue to be a part of it.”


Referring Pediatrician:  “I might need to make half a dozen referrals to have each area of concern analyzed.  That is very impractical.  CAPES changes everything.  When you have a resource available that will analyze the problem from all the different points of view that are required, whether they be medical, educational, emotional, or behavioral; and a place that can look at the impact on the family: the siblings, the parents, the extended family.  This is incredibly helpful for those patients that are hard to figure out.”

 

“Another problem within the healthcare world is competing egos; many times specialists want a greater influence over others and the direction and outcome of diagnoses for personal purposes and prestige. CAPES is designed where everyone is equal. There is no hierarchy. Everyone is there for a purpose, equally necessary and working toward a common goal to help a child and his/her family.”


Referring Occupational Therapist:  “I see a lot of really changeling kids, sometimes co-morbid mental health issues, so to have a team that I can bring kids to is really great.  They help me and the family see what is needed, in addition to the occupational therapy, for the best outcome for the child.”  

 

“These families and kids need a coordinated approach to care. The amount of time to resolve issues at hand is shorter than expected due to everyone participating in the process together. This approach is beneficial emotionally as less time in resolving the issues means less drain on family. It is beneficial socially, as children’s issues are resolved more quickly causing less social separation and strain. And finally, this process and method is beneficial financially, as treatment is not dragged out over many years and through several misdiagnoses.”

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“Families will sometimes organize around that family member in a way that is not functional.  They will comes to CAPES after seeing 10, 11, 12 providers all over the place, who don’t communicate with each other.  The fact that we sit down after seeing somebody and communicate, make a plan, and then follow that plan out is what works so nicely.”  


Referring Educational Expert:  A parent will go to one specialist and get one diagnosis and maybe some suggestions of what the school should do.  Then they go to another one that doesn’t help, they’ll go to another and another and they have to start the story all over again.  The families have gone year after year after year trying to get their child help.  When they go to CAPES, each of the individuals brings a piece of the puzzle to help that particular child.  

 

“I was unexpectedly surprised by how much I didn’t know about family dynamics and how to strengthen the parent and child roles. I now can understand how the other specialists’ roles fit into what I am trying to do and how important and effective their involvement can be. Treatment is maximized based on the help of the other doctors and specialists. I was shocked how fast we could improve a child through the program. By the working dynamic of having the underlying psychological problems taken care of, my treatment has become much more efficient and the child response to my treatment has been drastically expedited.”


“It was really tricky to get all the interactions between therapists and doctors.  If we’re all together, that’s Capes_cmyk logoamazing.  I knew what they were trying to accomplish and I called it “the big brain”.”


Referring Pediatrician:  “For the developmentally challenging cases, when you have things centralized, kids get a lot more help and a lot more efficiently.  There’s not a lot of duplication; you’re also not missing something that might be a key component to his issues.  I think that CAPES has provided the hope needed for my families, patients, and myself.  When I don’t know where to turn, they’re a great resource for me.”  


“I would say a general theme I see is that parents are very nervous, their hands are in the air, they have no hope, nothing left, they are on their last straw, they are drowning. We talk and implement a plan. They need something to work towards that is going to improve their lives. I really feel that the team is saving kids’ lives, saving families, saving marriages.”